BRAINSTEM TUMOR

Thank  you  for  your  reply.  I  will  also  follow  your  site  for  suggestions

Corrine my  16 1/2 year old has  a  intercervical medullar tumor.
Located  in  her  brainstem. Astrocytoma.  On  her  breathing  nerve, Dx  Jan- 02 doctors say  was  there since  birth triggered by hormones to  grow when  she  was 13. She  never  had  any  signs that  would  suggest this as  she  was  growing  up, of course now that  I  know  more,  I  see  thinking  back  how  it was  missed .And  Why. Medical insurance  doesn't  pay  for  testing and  doctors  don't  follow  up  or  believe  in  what  causes  these  cancers. The  signs  were  there.

        When  Corrine  was  dx .it  was  because  she  lost  her  vision when  she turned her  head. she never  had  any  vomiting  or balance issues ever. She  went  to  Boston's Children's Hospital to  the  best  and  was  operated  on  in  hopes  of  reliving the  pressure and  make  room for  the  spinal  fluid to  flow. Long  story  short, it  could  not  be  taken out  due  to  the  spinal  cord  growing  thru the  tumor all  those  years. A small piece was  taken  for  biopsy, 3 bones  removed in her neck to  allow  for  the  expansion of  the  tumor. I  was  told  to  take  her  home  arrange  for  radiation, and  expect her to  live, DEAF, unable to  swallow, And become mentally deficient due to the  radiation, maybe 6 months- 1year.

         Luckily I  have  a  older  daughter  who  is  a  holistic  nutrition and  former  med student. She  and  I  did  not listen  to  these  heartless "doctors". We together split our time, she  pumping Corrine  with  all  good  things  for  her  diet   I, thinking back  to  what  my  pregnancy  was like, remembered that I  had  been  told  to  terminate the  pregnancy  due  to  high  titers  of  toxoplasmosis when having  a amniocentesis. of  course  I  refused, Corrine  was  born outwardly  fine  but  no  follow  up  on  this  was  done. I had  lived  on  a  farm  before getting  pregnant and  was  exposed  to  a lot  of  animals. I  had  also contracted  full  blown  Lyme during  my 8th month  of  the term and Corrine was  born  premature and  no  antibiotics were given because  then  at  that  time no one believed  it  was  really needed .
    
With  the  help  of  the  internet and  my  older daughter's knowledge I  began to contact Germany and  Sweden ,sending  a form  e-mail, using  my German maiden name, asking  for  help from  scientists and  Doctors. I  did  get  responses. They  in  turn  led  me  to  understand  about parasitic tumors  and  a DX  machine  called a Vega machine.

I  then , thru  their   help , found  a  chiropractor who had a  machine  such  as  this,  who   agreed  to  see  my  daughter and  help  me. This led to  using a  Rife  machine months later.

Of  course all  this  was  done " behind  closed  doors" and  Corrine's  doctors  knew  nothing , but  the  bad  stuff, which there  was a lot  of.(She  went  though a lot  of  mental  issues,understandably so, I  might add)  There  was  no  one to  compare  to  or  get  support  from either. My  family  thought we  were  crazy!

 We  were  also  led to  a  old  world  Chinese herbalist, who  had  a  following  of  cancer  patients that  lived  beyond  what  was  expected, who  mixes a  bunch  of  herbs which  are brewed into tea, black and  bad tasting. which  Corrine  began  to  drink .

 3 years later we  have  a stack  of  MRI's done  every 6 months ,that  keep  showing  a  tumor  getting  smaller  and  more  defined. The  last one showed  that  it  is  breaking  up and  becoming  "see though." Her doctors  think  it  is  the  herbs that  have chemo  properties in  them.
They  do not  know  about  the  machine, since I  am  afraid that  since she is  a  minor they  would  force  me  into  other treatments. They  only found  out  about  the  Chinese  Dr. last  year after  seeing  the  MRI"s and  asking  me  what  was  I  doing  to  get  these  results. I  was having  a  hard  time  stalling  them  also. I  was  running  out  of  stories and getting  mad  about  their stupid answers to  my  questions about  their suggestions for  conventional treatments. KNOWLEDGE is  a  powerful thing!

       The  last  answer  I  got  from  them  was " I  don't know"  when  I  asked  them  "what  is  this  tumor  made  of "what  is  inside it ?" 

These Doctors  went  to  Harvard ,they  are  really  great  surgeons and  of course  very  smart and  educated men. Thank  god  they  are , or  my  child  would not  have  come  out  of  the  operation so  well, and  I  do  believe that  they  are  blessed  and  are  good  men .but  it  gets  annoying  to  hear them  say  foolish  things . Thank you  for  your interest , someday  when  Corrine  is  older I  will  tell   them, they  will  not  believe  me.  Corrine  does not  have  any  deficits except her hearing  and  peripheral vision which  were  damaged from  the  operation that  she  had. All  her  motor  functions and  IQ are  fine.

She  wears glasses but  does not  need a  hearing aid. Goes  to  regular  school and  walks 1 mile  every day with  her  friends.

 I  did  try to  tell  the  parents  of  the  children's  brain  tumor  internet  group that I  belonged  to   a year  ago, and they  told  me  I  was  crazy ,I  told  them  I  had  MRI"S to  prove  it and  they  still  did I  not  want  to  hear  it. I don't  go to  the  site  anymore  because  their  children  die  from the radiation  effects in 6-12 months  and I  can't  bear  to  read  about  the  details.
Maybe someday  children  won't  have  to  die  because  of  ignorance. 

“GSH”